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Patient Advocacy Voices
Patient advocacy is a critical area in healthcare that is transforming the lives of patients across the country by helping them overcome barriers to access and care. Join Sanofi US Head of Public Affairs and Patient Advocacy, Eric Racine, and his co-hosts to meet some of the unsung heroes leading patient advocacy organizations. In each episode, we will discuss the challenges each group has faced and share actionable insights to address gaps and help make the U.S. healthcare system work better for patients. Whether you're a seasoned advocate or new to the field, we hope this podcast will open your mind to new ideas and inspire action. Subscribe now and become part of a community dedicated to making a difference for patients.
This podcast is provided as a resource only and does not constitute an endorsement by Sanofi of any particular organization or its programming. Additional resources on this topic may be available and should be investigated.
Patient Advocacy Voices
From Invisible to Empowered: Advocacy Strategies from PDSA to Drive Early Recognition, Patient Connections, and Innovation
When patients are living with a misunderstood condition, and healthcare providers may not always have the answers, advocacy organizations have the power to step in and help close the gaps. In this episode, host Eric Racine and co-host Elizabeth Franklin sit down with Caroline Kruse, President & CEO of the Platelet Disorder Support Association (PDSA), whose personal experience with ITP, a rare autoimmune disease, profoundly shapes how she leads. From helping patients and clinicians recognize ITP sooner, to connecting patients, engaging in R&D, and advocating for patient-focused policies, PDSA is powered by a team of people with lived experience.
In this episode you’ll hear insights on how to:
- Amplify disease awareness through storytelling and creative outreach
- Overcome the challenge of educating healthcare providers about a misjudged disease
- Build connections that transform patient isolation into patient empowerment
- Contribute to the leading edge of innovation by generating patient data and bringing patients’ perspectives directly to the scientific community
Whether you work in a rare disease area or any underserved patient community, this conversation offers fresh ideas and practical approaches for expanding your organization’s reach and impact.