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Patient Advocacy Voices
Patient advocacy is a critical area in healthcare that is transforming the lives of patients across the country by helping them overcome barriers to access and care. Join Sanofi US Head of Public Affairs and Patient Advocacy, Eric Racine, and his co-hosts to meet some of the unsung heroes leading patient advocacy organizations. In each episode, we will discuss the challenges each group has faced and share actionable insights to address gaps and help make the U.S. healthcare system work better for patients. Whether you're a seasoned advocate or new to the field, we hope this podcast will open your mind to new ideas and inspire action. Subscribe now and become part of a community dedicated to making a difference for patients.
This podcast is provided as a resource only and does not constitute an endorsement by Sanofi of any particular organization or its programming. Additional resources on this topic may be available and should be investigated.
Patient Advocacy Voices
Building Awareness, Driving Change: Inside APFED’s Strategy for Rare Disease Advocacy
How do you drive awareness for a rare disease with a name that’s difficult to even pronounce and a wide range of symptoms that mimic other conditions?
In this episode, host Eric Racine and co-host Preeya George-Guiser sit down with Mary Jo Strobel, Executive Director of the American Partnership for Eosinophilic Disorders (APFED), about the organization’s strategic approach to rare disease advocacy.
Mary Jo shares how APFED blends creativity, strategy, and a patient-centered approach to raise awareness and improve lives for patients living with eosinophil-associated diseases.
From creative targeted awareness campaigns to evidence-based initiatives, this conversation highlights how cross-sector collaboration can accelerate correct diagnosis and treatment and create lasting change in rare disease communities.