Patient Advocacy Voices

Capturing Data to Evaluate and Communicate Impact

Sanofi US Patient Advocacy Season 1 Episode 2

Impact is a word we often use in patient advocacy. We know it’s important to the patients and communities being served, and that it also matters to the funders of advocacy programs. But how do you capture impact, when do you start, where does the information come from, and how should it be communicated? Sanofi host Eric Racine and co-host Elizabeth Franklin discuss this with our guest, Aicha Diallo, patient advocacy leader and senior director of programs at the Patient Empowerment Network (PEN), shares a methodology for capturing and communicating the impact of advocacy programs. Learn how PEN listens to the needs of their audience, involves patients and community partners in defining impact, and creates a process for ongoing data collection. Access to the right data enables clear communications with their important stakeholders. Aicha’s impressive public health background and unique ability to keep a finger on the pulse of the communities she serves equips her with a wealth of knowledge that she shares in this episode.